The Arthouse Meath

Welcome to the ARTHOUSE Meath charity blog- a non profit Centre of Excellence celebrating the artistic talents of adults living with learning difficulties and severe Epilepsy.

Wednesday, 20 July 2011

Living With Epilepsy

It is often difficult for the residents we look after to be able to describe their seizures, these descriptions give a small insight into what they feel when experiencing certain seizure types.


These accounts come from people whose epilepsy affects a part of their brain either before or during a seizure when they haven't lost consciousness entirely, but enough for it to be disturbed in various ways.
Annie Parker.
  • The seizures start with a feeling of time slowing down immensely while everything is happening in slow motion as it has done many times before. I then get a feeling of warmth and tightness in the pit of my stomach and then a sudden feeling of terror and I know it's going to happen again and I start to panic and feel I can't breathe.
  • I have a short warning. Everything is amplified tremendously and then the visions start, it starts with a view of a city in ruins. I can never remember afterwards exactly what I see after that. When I come round I'm often extremely disorientated, forget my name and suffer extreme emotional confusion and usually tears.
  • It's like people whispering, that's the nearest I can get to it. There's a kind of 'fwish, fwish,fwish in my ears for about 30 seconds before I black out. After a seizure I feel disorientated, sounds are muffled and I have a headache. I have little memory of the seizure but as I am semi - conscious when I recover I can realise something is wrong and ask others to verify it.
  • My chest and stomach start tightening. I feel a kind of exultation and an intense feeling of love and radiance.
  • People sound as if they are talking through water or through some other medium - I know people are speaking to me but the words are distorted. Then I start to feel dizzy and sick and feel like I'm losing it. 
  • I get a foul smell, like rotting eggs followed by a rising or surging sensation in my stomach, a bit like being on a roller coaster. Then I feel as if I'm being sucked into a narrowing tunnel. 

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